Thursday, February 16, 2012

February appointments.

Chase had 2 SB appointments this month. One with his urologist and one with his neurosurgeon. He also had a speech eval and of course his regular therapies through E.I.

Urology - He had an ultrasound and things looked good. We don't have to come back for 3 months. We will need to schedule a Video CMG within the next month and if his testical doesn't drop with in the next 3 months, we will talk about going in and retreving it. Not too bad, but not excelent.

Neurosurgery - His ventricles were still small, so we bumped the pressure down to 1.5! Yay! We don't have to go back for 6 weeks. Yay! But...his right eye is turning in so we will be seeing an eye doctor in the next couple of months...could be worse right?

Developmental and Physical Therapy - He's moving right along. He is just about where he should be. He does good with lifitng his head and he is grabbing thing and batting at his toys too.

Speech evaluation - He doesn't need speech therapy. He is making the sounds he should be and his suck/swallow is great!

Next week Chase has his 4 month checkup and shots.. but we will talk about starting food. Crazy!!!!

Here is what I'll leave you with...


Wednesday, February 1, 2012


As many of you know, Chase has a latex precaution since many Spina Bifida patients develop a latex allergy....

I now have a latex obsession....and it's not a good one. We can send the thank you to Sopie the Giraffe for this (she is made of latex).

Do you know how many house hold items have latex? (here)Apparently, a lot. This is where the obsession starts.

I was looking into getting a Sophie the Giraffe for Chase, but she is made of latex and since it’s used as a teething toy, it would probably not be a good idea for him to have it and have a reaction in his mouth. So, I email them and asked if they had a non-latex Sophie (I’m still waiting to hear back). This, of course, spiraled to emailing Gerber about a tooth and gum cleaner we have, The First Years about a health care kit we received and I keep finding more and more stuff to inquire about. I just found out a pacifier that he likes to use is made out of latex…now I feel like a bad mom.

I have things out of packages so I don’t even know where they have come from or who it is made by. I have to decide if keeping it is worth it or should I just throw it away and start over.

I’ve become fearful of it and it’s starting to stress me out. It’s becoming a nightmare. I feel that had I known he had Spina Bifida, I would be better prepared for this, which knowing and preparing is a whole other topic for a whole other post.

In better news though, Chase is doing well. His soft spot is still low so I’m sure his shunt is still working. He is oooh-ing and ahhhh-ing and goo-ing and laughing! The therapists are saying he is up to par with where he should be. He had a speech evaluation yesterday and she said right now he doesn’t need speech therapy. WIN!

I will leave you with this:

Its my new favorite! <3