Tuesday, March 27, 2012

Neuro/Ortho update

As I mentioned, Chase was due to see the Neuro this week and we were seeing the Ortho for the first time.

The Ortho said that his spine looks great, and his hips don't look shallow like other kids with SB. She stated from an ortho standpoint, he is at the mild sacral end of SB. When he starts looking like he wants to try and start walking, they will fit him for AFO's (braces) and he may need a walker to help him out. Depending on how well he does, he may just need ankle braces in the future. I'm determined to prove them wrong and show the he won't need any!

The Neuro says he doing great! His ventricles were small again so she bumped his shunt pressure to 2.0! It was a quick visit and we don't have to go back for 6-8 weeks!

Next appointment is for his Urodynamic testing. Let's hope that goes just as great!


Saturday, March 24, 2012

5 months old

I know, I know. He turned 5 months old 5 days ago. Sorry.

Stats: 18lbs 4oz 27in long. (He's a moose)

I can't believe I've had my very own baby for 5 months. CRAY-CRAY!!!! Everyday is a new experience for us. Things seem better now that he has his glasses. We've gotten through veggies and now we are onto fruit. He's fitting in 12m tops and 9m bottoms....

Where did my baby go??

I'm happy and sad to see him grow. It is definitely bittersweet.

I'll write again after Tuesday; he has a neuro appt and his first ortho appt!


Thursday, March 15, 2012

Thursday, March 8, 2012

4 months old and glasses

We're 4 months in. YAY! It feels like it's been longer. I can't believe in 8 months, we will be 1 year old! Wowza! We have a lot going on the next couple of months!

We started eating solids about 2 weeks ago. So far he has eaten rice cereal, oatmeal, barley cereal (he loved barley) and we started peas just this Tuesday (he loves these too) I have a feeling he won't have any problems on eating.

He is also in tops in sizes 6m, 9m and 12m...He has a long torso and short legs!

Chase saw the eye doctor today and he will be wearing glasses starting next week when they come in. He is farsighted meaning he doesn't see well up close. Poor guy and I'm always in his face, lol. The glasses will also help his eyes from turning in.

He has a shunt recheck at the end of this month and he will also get to see..the orthopedic doctor (finally!!!) I've been waiting for 4 months to see her and know what she thinks about Chase and his legs and movement, ect. Hopefully she will say good things because if her opinion is totally different that what I've been thinking, I may cry...then prove her wrong!

In mid April we will (also finally) have his urodynamic testing. I'm am hoping very hard that everything will be just fine and we still won't need to cath him. He will also have his 6th month check up (6 months, what?????) and then in May we will see the urologist to find out the results of his uro tests and talk about his testicle (hopefully it will have descended by May)

Whew! What a busy 2 months we have ahead of us!

Chase was featured in 2 blogs this month! Check us and the blogs out!!

The Never Stop Mom
This is a mommy blog written by a dear friend of mine! It's a great read!!!

Spina Bifida Stories
This is also a great blog to read! It's very heart warming and shows that having spina bifida won't stop anyone!

Of course I will leave you with a picture: