Monday, January 23, 2012

3 Months

Chase turned 3 months old on the 19th. WOAH (insert Joey Lawrence here)3 months? Really? Where did the past 3 go? Hrumph....

Anyways. I tried so so hard to do cute pictures of him and it just was not happening. I tried to iron on a "bowtie" that said 3 months onto a onesie, it wouldn't transfer. So I ghetto-ly wrote 3 months on the onesie. Chase did not want to participate either. BOO!!!

I got this picture of him the next day:

It works.... I made this:

What a difference 3 months make.

Bonus: He keeps trying to laugh. He doesn't quite have it down yet, but I will post the video on YouTube soon.

That's all for an update I have. I will leave you with one more picture which is my new favorite:


Wednesday, January 18, 2012

Some light in our tunnel!

We had our revision postop yesterday. Dr. B said that his ventricles were very small so she decreased his pressure setting from 0.5 (the highest) to 1.0. This means his shunt is working properly. This also makes me think that it hasn't been working properly since November 18th when we had our first overnight stay.

I've come to realized that a lot of people don't really know what Spina Bifida is, and the sad part is that it is more common than it is acknowledged.

So my faithful readers I encourage you to to check out the following sites:

Spina Bifida Association

Spina Bifida Association of Illinois

and since Chase has hydrocephalus:

Hydrocephalus Association

Hydrocephalus Kids

Spread the word. Help others know what Spina Bifida and Hydrocephalus is!

And here is a pic of Chase from this morning:

Thursday, January 5, 2012

Did we meet our deductable for 2012?

I'm pretty sure we did. Chase had his first revision yesterday. The catheter that went from his ventricles to his shunt device/pump was clogged and he was bypassing his CSF through his burr hole, which in turn was collecting around his shunt site. His neurosurgeon decided in clinic Tuesday that it needed to be done. Bryan took him down Wednesday for the procedure and stayed with him overnight. He is home and doing well and we're hanging out together tomorrow. :)

He will be starting his PT and DT through Early Intervention on Tuesday. I'm actually really excited for him to be starting, although, I think I double booked the therapists...

He will go back to see the neurosurgeon on the 17th to check how he is doing from surgery.

That's all I've got for now.

Here ya go:


Sunday, January 1, 2012

Happy New Year!!

It's going to be a fun year, I can already tell. We're hoping for no hospital stays this year, so this means we cannot have any shunt malfunctions!!!

We did have an overnight stay on Christmas Eve. Chase's shunt site was quite swollen. They observed him overnight and said there are no signs of it malfunctioning. He had a x-ray and CT and both showed no signs of obstruction. The Doctor had said that some fluid may have leaked out from the hole and collected around the shunt. Since there was no sign of a malfunction, they didn't seem concerned and they sent us home.

Santa left some presents at the hospital for Chase since he didn't know if we would be back in time for Christmas. Chase got some ornaments, some books and a Beanie Baby Crab. Santa also left a lot of presents in Chase's room, but was unable to wrap them :)

We have our first Spina Bifida Clinic on January 3rd. We will see all of his specialists that day which will include his neurosurgeon, his urologist and his orthopedic. This will be the first time we see his orthopedic specialist and I'm interested to see what she has to say about his legs and feet and movement of them.

I think that's all I have for an update for now. I'll post an update after his appointment on Tuesday...