Chase is 7 months old (as of May 19th).
He really is growing up so fast!! The time is flying by and before we all know it, I will be posting about his 1st birthday!
Chase has been holding his own bottle and sippy cups lately. He gets excited to see a sippy with handles and while he's still working on his aim and tilting back, I'd say he's doing pretty well.
He's sitting up more and more on his own. It's hard work, but he is getting better at it. He also tries to pull from laying down to sitting, but that silly belly gets in his way, lol.
Chase had a MRV and saw his neurosurgeon on May 22nd. His ventricles have opened a bit but are not as opened as she would like to see, so she turned his pressure down again. His shunt is now set at 2.5 which is the lowest it will go! We don't have to see her again until the end of July or beginning of August.
We had Chase's Early Intervention 6 month evaluation. He met the goals we set in December! Our new goals include rolling consistently, and sitting straight up unassisted.
Chase doesn't have and major appointments coming up soon. Just a eye recheck and then July will be his 9 month checkup and August will be his surgery (yuck).
Hopefully next month we will have more to report!
-e
Chase's journey with Spina Bifida
Tuesday, May 29, 2012
Wednesday, May 2, 2012
A half of a year later....
And a few weeks. Sorry :)
Chase turned 6 months old on April 19th. Where has the time gone? My little man is not so little anymore, weighing in at 19lbs 8oz and 27inches long. He's also wearing 12 month clothes!
He's rolling and starting to be able to sit up for longer periods of time! He's been teething, but no teeth poking out yet. It's a great feeling to see how far we have come.
He had his urodynamic testing last month also. We recieved the results of that yesterday: (ahem)
THERE IS NO NEED TO CATH HIM OR ADMINSTER MEDS!!!!
He emptys his bladder well. We go back for a recheck in 6 months and depending on how that looks, his urology visits will drop to yearly!!!
However.... :-/
Chase's testicle still has not decended so his urologist has decided to surgically intervene. The good news is, it's an outpatient procedure and can be done a Lake Forest Hosptial which is a lot closer that Children's, especiall since Children's is moving in June.
We see his neurosurgeon on May 22nd. He will have his routine MR Ventricles and we will see if they are still small and we can turn his shunt down again or if they are stable.
In some other news:
Our friend Mark is in a contest to win a new van for him and his mom. If you would like to vote for him, please do so here. You can vote once a day and if he and his mom win this van it would be a huge help!!!
There are 2 blogs that I have been reading about two little girls that have some very grave diseases Nora who has Trisomy 18 and Avery who unfortunatly lost her battle to Spinal Muscular Atrophy on April 30th. Please read and share therr blogs to raise awareness about their diseases!
We'll update after our neuro appointment on the 22nd!
Make sure you check our YouTube page for new videos
-e
Chase turned 6 months old on April 19th. Where has the time gone? My little man is not so little anymore, weighing in at 19lbs 8oz and 27inches long. He's also wearing 12 month clothes!
He's rolling and starting to be able to sit up for longer periods of time! He's been teething, but no teeth poking out yet. It's a great feeling to see how far we have come.
He had his urodynamic testing last month also. We recieved the results of that yesterday: (ahem)
THERE IS NO NEED TO CATH HIM OR ADMINSTER MEDS!!!!
He emptys his bladder well. We go back for a recheck in 6 months and depending on how that looks, his urology visits will drop to yearly!!!
However.... :-/
Chase's testicle still has not decended so his urologist has decided to surgically intervene. The good news is, it's an outpatient procedure and can be done a Lake Forest Hosptial which is a lot closer that Children's, especiall since Children's is moving in June.
We see his neurosurgeon on May 22nd. He will have his routine MR Ventricles and we will see if they are still small and we can turn his shunt down again or if they are stable.
In some other news:
Our friend Mark is in a contest to win a new van for him and his mom. If you would like to vote for him, please do so here. You can vote once a day and if he and his mom win this van it would be a huge help!!!
There are 2 blogs that I have been reading about two little girls that have some very grave diseases Nora who has Trisomy 18 and Avery who unfortunatly lost her battle to Spinal Muscular Atrophy on April 30th. Please read and share therr blogs to raise awareness about their diseases!
We'll update after our neuro appointment on the 22nd!
Make sure you check our YouTube page for new videos
-e
Tuesday, March 27, 2012
Neuro/Ortho update
As I mentioned, Chase was due to see the Neuro this week and we were seeing the Ortho for the first time.
The Ortho said that his spine looks great, and his hips don't look shallow like other kids with SB. She stated from an ortho standpoint, he is at the mild sacral end of SB. When he starts looking like he wants to try and start walking, they will fit him for AFO's (braces) and he may need a walker to help him out. Depending on how well he does, he may just need ankle braces in the future. I'm determined to prove them wrong and show the he won't need any!
The Neuro says he doing great! His ventricles were small again so she bumped his shunt pressure to 2.0! It was a quick visit and we don't have to go back for 6-8 weeks!
Next appointment is for his Urodynamic testing. Let's hope that goes just as great!
-e
-e
Saturday, March 24, 2012
5 months old
I know, I know. He turned 5 months old 5 days ago. Sorry.
Stats: 18lbs 4oz 27in long. (He's a moose)
I can't believe I've had my very own baby for 5 months. CRAY-CRAY!!!! Everyday is a new experience for us. Things seem better now that he has his glasses. We've gotten through veggies and now we are onto fruit. He's fitting in 12m tops and 9m bottoms....
Where did my baby go??
I'm happy and sad to see him grow. It is definitely bittersweet.
I'll write again after Tuesday; he has a neuro appt and his first ortho appt!
-e
Stats: 18lbs 4oz 27in long. (He's a moose)
I can't believe I've had my very own baby for 5 months. CRAY-CRAY!!!! Everyday is a new experience for us. Things seem better now that he has his glasses. We've gotten through veggies and now we are onto fruit. He's fitting in 12m tops and 9m bottoms....
Where did my baby go??
I'm happy and sad to see him grow. It is definitely bittersweet.
I'll write again after Tuesday; he has a neuro appt and his first ortho appt!
-e
Thursday, March 15, 2012
Thursday, March 8, 2012
4 months old and glasses
We're 4 months in. YAY! It feels like it's been longer. I can't believe in 8 months, we will be 1 year old! Wowza! We have a lot going on the next couple of months!
We started eating solids about 2 weeks ago. So far he has eaten rice cereal, oatmeal, barley cereal (he loved barley) and we started peas just this Tuesday (he loves these too) I have a feeling he won't have any problems on eating.
He is also in tops in sizes 6m, 9m and 12m...He has a long torso and short legs!
Chase saw the eye doctor today and he will be wearing glasses starting next week when they come in. He is farsighted meaning he doesn't see well up close. Poor guy and I'm always in his face, lol. The glasses will also help his eyes from turning in.
He has a shunt recheck at the end of this month and he will also get to see..the orthopedic doctor (finally!!!) I've been waiting for 4 months to see her and know what she thinks about Chase and his legs and movement, ect. Hopefully she will say good things because if her opinion is totally different that what I've been thinking, I may cry...then prove her wrong!
In mid April we will (also finally) have his urodynamic testing. I'm am hoping very hard that everything will be just fine and we still won't need to cath him. He will also have his 6th month check up (6 months, what?????) and then in May we will see the urologist to find out the results of his uro tests and talk about his testicle (hopefully it will have descended by May)
Whew! What a busy 2 months we have ahead of us!
Chase was featured in 2 blogs this month! Check us and the blogs out!!
The Never Stop Mom
This is a mommy blog written by a dear friend of mine! It's a great read!!!
Spina Bifida Stories
This is also a great blog to read! It's very heart warming and shows that having spina bifida won't stop anyone!
Of course I will leave you with a picture:
-e
We started eating solids about 2 weeks ago. So far he has eaten rice cereal, oatmeal, barley cereal (he loved barley) and we started peas just this Tuesday (he loves these too) I have a feeling he won't have any problems on eating.
He is also in tops in sizes 6m, 9m and 12m...He has a long torso and short legs!
Chase saw the eye doctor today and he will be wearing glasses starting next week when they come in. He is farsighted meaning he doesn't see well up close. Poor guy and I'm always in his face, lol. The glasses will also help his eyes from turning in.
He has a shunt recheck at the end of this month and he will also get to see..the orthopedic doctor (finally!!!) I've been waiting for 4 months to see her and know what she thinks about Chase and his legs and movement, ect. Hopefully she will say good things because if her opinion is totally different that what I've been thinking, I may cry...then prove her wrong!
In mid April we will (also finally) have his urodynamic testing. I'm am hoping very hard that everything will be just fine and we still won't need to cath him. He will also have his 6th month check up (6 months, what?????) and then in May we will see the urologist to find out the results of his uro tests and talk about his testicle (hopefully it will have descended by May)
Whew! What a busy 2 months we have ahead of us!
Chase was featured in 2 blogs this month! Check us and the blogs out!!
The Never Stop Mom
This is a mommy blog written by a dear friend of mine! It's a great read!!!
Spina Bifida Stories
This is also a great blog to read! It's very heart warming and shows that having spina bifida won't stop anyone!
Of course I will leave you with a picture:
-e
Thursday, February 16, 2012
February appointments.
Chase had 2 SB appointments this month. One with his urologist and one with his neurosurgeon. He also had a speech eval and of course his regular therapies through E.I.
Urology - He had an ultrasound and things looked good. We don't have to come back for 3 months. We will need to schedule a Video CMG within the next month and if his testical doesn't drop with in the next 3 months, we will talk about going in and retreving it. Not too bad, but not excelent.
Neurosurgery - His ventricles were still small, so we bumped the pressure down to 1.5! Yay! We don't have to go back for 6 weeks. Yay! But...his right eye is turning in so we will be seeing an eye doctor in the next couple of months...could be worse right?
Developmental and Physical Therapy - He's moving right along. He is just about where he should be. He does good with lifitng his head and he is grabbing thing and batting at his toys too.
Speech evaluation - He doesn't need speech therapy. He is making the sounds he should be and his suck/swallow is great!
Next week Chase has his 4 month checkup and shots.. but we will talk about starting food. Crazy!!!!
Here is what I'll leave you with...
-e
Urology - He had an ultrasound and things looked good. We don't have to come back for 3 months. We will need to schedule a Video CMG within the next month and if his testical doesn't drop with in the next 3 months, we will talk about going in and retreving it. Not too bad, but not excelent.
Neurosurgery - His ventricles were still small, so we bumped the pressure down to 1.5! Yay! We don't have to go back for 6 weeks. Yay! But...his right eye is turning in so we will be seeing an eye doctor in the next couple of months...could be worse right?
Developmental and Physical Therapy - He's moving right along. He is just about where he should be. He does good with lifitng his head and he is grabbing thing and batting at his toys too.
Speech evaluation - He doesn't need speech therapy. He is making the sounds he should be and his suck/swallow is great!
Next week Chase has his 4 month checkup and shots.. but we will talk about starting food. Crazy!!!!
Here is what I'll leave you with...
-e
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