We did have an overnight stay on Christmas Eve. Chase's shunt site was quite swollen. They observed him overnight and said there are no signs of it malfunctioning. He had a x-ray and CT and both showed no signs of obstruction. The Doctor had said that some fluid may have leaked out from the hole and collected around the shunt. Since there was no sign of a malfunction, they didn't seem concerned and they sent us home.
Santa left some presents at the hospital for Chase since he didn't know if we would be back in time for Christmas. Chase got some ornaments, some books and a Beanie Baby Crab. Santa also left a lot of presents in Chase's room, but was unable to wrap them :)
We have our first Spina Bifida Clinic on January 3rd. We will see all of his specialists that day which will include his neurosurgeon, his urologist and his orthopedic. This will be the first time we see his orthopedic specialist and I'm interested to see what she has to say about his legs and feet and movement of them.
I think that's all I have for an update for now. I'll post an update after his appointment on Tuesday...
-e
Hey Em, Marielle here from RLHS and stuff...just want to let you know first of all thinking of you guys as you deal with all this, and little Chase. But I also wanted to tell you that my best friend who I met at RLHS, Patty, has spina biffida, and when I told her about Chase she wanted me to tell you that if you would ever like to talk to someone who has spina biffida and has been dealing with it for years now, she would be more than happy to talk to you. If you want me to give you her information just drop me a line on FB and I'll be happy to do that.
ReplyDeleteEither way, I hope things go well with all the appointments!