Wednesday, January 18, 2012

Some light in our tunnel!

We had our revision postop yesterday. Dr. B said that his ventricles were very small so she decreased his pressure setting from 0.5 (the highest) to 1.0. This means his shunt is working properly. This also makes me think that it hasn't been working properly since November 18th when we had our first overnight stay.

I've come to realized that a lot of people don't really know what Spina Bifida is, and the sad part is that it is more common than it is acknowledged.

So my faithful readers I encourage you to to check out the following sites:

Spina Bifida Association

Spina Bifida Association of Illinois

and since Chase has hydrocephalus:

Hydrocephalus Association

Hydrocephalus Kids

Spread the word. Help others know what Spina Bifida and Hydrocephalus is!


And here is a pic of Chase from this morning:




1 comment:

  1. Chase is looking adorable. Thanks for sharing your story, it truley is eye opening:)

    ReplyDelete